Beyond dementia

Beyond dementia diagnosis

so I saw my primary doctor last week. I told her what my specialist said…that I have mild dementia. I went on to tell her I went to an attorney and had legal paperwork drawn up. Such as healthcare power of attorney, durable power of attorney and living will. Then I went on to explain that I will not be put in a long term facility when I am incompetent. That I hired a ” death Doula” who will facilitate my passing using VSED. VSED is voluntary stopping eating and drinking. Basically through not eating and drinking you die of dehydration. So I asked my doctor if she would sign a DNR order for me. She agreed. So I’m almost done with all the legal stuff. I’m not going to start vsed soon..I’m still competent and can manage my own affairs. I’m just setting everything up to where when it’s time, I won’t have to jump major hoops. I feel a sense of freedom now. I don’t have to sit here worried about my future with dementia and being placed in a horrible, being dependent on others for all my needs. My background is that for 12 years I took care of clients with dementia, mostly in there homes. At the same time I visited my dad in a nursing home…he had dementia and he was very disabled from it until he passed. Then I visited my mom for 3 years, almost every day, in a memory care. She died not as demented as my dad, but bad enough. It wasn’t watching my parents go through it that was the worse, it was actually watching their peers deteriorate. When a person is in good physical health but have dementia they end up totally dependent, for EVERYTHING, with contractures and unable to talk. It is utter hell. Not for me.

Next I will write more about vsed. Take care

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4 responses to “appointment with my doctor about a DNR order”

  1. Traci Lee Avatar

    I have never heard of VSED. I would have to do more research on it. The first question I had was whether or not it will be painful to be hungry or thirsty all of the time?

    Despite that, I am very happy that you have gotten your affairs in order. I am wishing you the best!

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  2. carolfmiller Avatar

    hi Traci. VSED is very interesting. It is not painful to die by not eating and drinking. The persons hunger goes away after a couple of days, so that’s not a big problem but not drinking is more of a problem. The thrist drive is very strong and the dry mouth is a real problem. Oral care to the mouth moist is a must. Here in new mexico, medical aid in dying is legal. Where a doctor will give you medication to end your life, if you have a terminal diagnosis and they think you will die within 6 months and your competent to make decisions. Unfortunately, with dementia you don’t qualify. So that’s where Vsed as an alternative comes into play. It’s unfair, in my opinion, that with such a devastating disease as dementia is, we can’t use medical aid in dying.

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    1. Traci Lee Avatar

      Wow, I didn’t know any of this at all. Thank you very much for sharing a bit about VSED!

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  3. carolfmiller Avatar

    youre welcome Traci. I’ll be writing more about it as I learn more.

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